The John McGivney Children's Centre actively supports research that ultimately enhances the lives of children and youth with special needs. In partnership with community agencies, children's treatment centres and/or research centres, families and staff of the John McGivney Children's Centre participate in research projects that have been approved by a Research Review Committee. If you are interested in participating in a research project or would like to invite JMCC to participate in a research project, please contact firstname.lastname@example.org.
The Impact of Personal, Interpersonal and Environmental Factors on the Quality of Life for Youth with Chronic Conditions
The goal of the project is to collect and analyze information from youth across the province and their families on factors that may impact changes in their quality of life. This information will be used to shape services to better meet the needs of youth and their families.
To view further information regarding this Quality of Life Study, please see: http://www.tvcc.on.ca/qol.htm
Youth, aged 11 – 17 years who have a chronic condition and their families. They must be able to understand and communicate in English or French.
Janette McDougall, PhD, Thames Valley Children’s Centre and Virgina Wright, PhD, Bloorview Kids Rehab
Louise Henry, OT (lead interviewer) and Dawn Mulder (research assistant)
Other Participating Centers:
Grandview Children’s Centre (Oshawa), Thames Valley Children’s Centre (London), Prism Centre (Chatham/Kent), Bloorview Kids (Toronto), Children’s Treatment Centre (Sudbury), Ottawa Children’s Treatment Centre (Ottawa), Child Development Centre (Kingston), and Children’s Treatment Network of Simcoe York
The project is funded for five years, starting in 2009, through the Canadian Institutes for Health Research. All data has to be collected and submitted by January 31, 2015.
This study has been granted a full year extension which means the researchers will be able to comprehensively disseminate longitudinal findings. The new study end date is now March 31, 2017!
We are happy to share with you the first published article based on longitudinal data, first authored by Nicole Etherington, a Project Coordinator previously working on the study. This paper investigates the association between maternal factors and the emotional and behavioural functioning of youth over time. A holistic and family-centred approach to assessment and service delivery is indicated to ensure adolescents and their families receive support for interrelated needs.
Please find the article attached here: Maternal factors and the emotional and behavioural functioning of adolescents with chronic health conditions
We currently have another manuscript submitted to a journal that examines changes in QOL over time for youth and the predictors of that change (the primary goal of the study). Once the article is published, we will also share that with you. We think you will be interested and surprised by the findings.
Please check out the webpage for links to reports, articles, and presentations:
Once again, thank you to youth and families for giving your valuable time to the QOL study. We could not have done it without you.